good Life Anti AIDS drug treatments are prolonging life for many teenagers with HIV, But scant few. a lot more than 13,000 Americans under age 24 have died since the AIDS epidemic struck in the early 1980s, in government statistics. some kind of 4,800 of those claimed of AIDS deaths were children under age 15. JACKIE VALENZUELA IS ONE OF the facts. The phoenix, az, az, Girl yearned to have a good time her fifteenth birthday, A coming of age landmark observed with great festivities in her Latino community. Jackie's relatives say the irrepressible child lost her combat with HIV; but probably won. in their own short life, Jackie Valenzuela saw her family received by AIDS. Jackie's grand mother, Father and little chinese women brother all died of the condition before it finally killed Jackie, In may perhaps, 1998. But she lived long enough to become something incredible: an adolescent born with HIV. Adela Valenzuela, Jackie's girlfriend, contracted HIV infection in 1982, A year before scientists identified it as the virus that causes AIDS. During a miscarriage, Adela got an HIV polluted blood transfusion. One of the unusual features of HIV infection is that symptoms of the disease typically lurk undetected until a few years later. By the time Adela was clinically determined to have AIDS in 1987, genital herpes had infected her whole family. Jackie wrote a 10 page life story when she was 13, branded "Jackie's HIV your life, Adela had girl girl named Jacqueline (Jackie) Valenzuela. Jackie acessed three pounds. Jackie's grandmother, Carolina Cavazos, Took good care of her since birth. the physician took tests. They found that Jackie was HIV beneficial and that Adela had it too; So did any dad, Billy. right after, Adela had another baby, A boy branded as Billy Valenzuela. They thought to be him after his dad, Billy. Since Adela was lots of money,ever wondered to get the HIV virus, everyone had it. Two long years later, Adela began to get very ill. She did start to lose her hair and get sores on her body. She had to give the children to her mother and father because she was too sick to look after them all. Adela went to the hospital. For two weeks she was in the hospital. She was stressed a lot. She was at the ready with God. right after the two weeks, She died. It was a very sad time for your loved ones. Jackie was raised by her grandparents, Carolina on top of that Felipe Cavazos, Both custodial workers chinese brides living in a poor specific geographic area of Phoenix. Two doting aunts also assisted out. Jackie and her little brother were endlessly sick, But Jackie weren't sure why. She took lots of medicines that she'd later learn were anti AIDS drugs, But the adults never told Jackie she was HIV positive until she was 12. "My mom wanted to keep it from her as far as possible, relates Jackie's aunt, Elida Chavez. "She felt Jackie might get depressed and also die like her mother. Jackie's mother was so emotionally vulnerable by HIV that she wanted to commit suicide, Jackie's little brother died of AIDS related causes in 1991. Her father acquired four years later. regardless of the illnesses, Jackie would have been a spirited, Rascally child. One time she smuggled some baby frogs into her pediatric disease clinic, Then shook hands with a doctor, Palming a slimy amphibians. "She just lived daily, To the fullest extent, Says various other aunt, Linda Valenzuela. Like many adolescents with HIV, Jackie was physically smaller than her peers. She looked similar to a 9 year old than a young woman. Some kids in class would pick on her, Carolina declares, Teasing her about being so skinny and the lack of a mom. subsequently, that Jackie "Went police" information on her HIV, The torment persistent. "One thing I remember Jackie telling me is that when you're an adolescent, It's all about your image, Says her medical professionsal, Janice Piatt, Of Phoenix your children's Hospital. "Jackie had an intravenous treatment port on her chest. And it developed a lump, So when girls were wearing tank tops, Jackie dons a tank top. they might hassle and tease her about the port, So I will be a young person and a young person with HIV. that might be pretty cool. in their diary, Jackie wondered if she'd ever have children. She decided 4 will be a suitable number, 3 womens and a boy. She resolved to live to at least age of 44. currently, Jackie also wanted to live a life free of medicine she had to swallow several times a day. "I'd have the pills in the pockets of her pants, replies Caroline. "I'd testify to the fact, You're doing first rate, But i'm not sure what will happen to you if you stop taking them, But in early 1997, Jackie to be able to stop taking her medicine altogether. "She was tired of taking these medicine all her life, reports Aunt Elida. "I think she wanted to get away from all that and be as normal as she could be. She merely wanted to live her life, Elida adds that many, As a child of a Christian home, Jackie knew she was going to heaven, Where she would see mom she lost at age four. doctor. Piatt says the most significant challenges for children and teens with HIV is sticking to the strict, Demanding medications regime. "These kids don't really think of themselves as HIV positive, They are trying go to the dance next week, states. "We grownups are all losing it and thinking, 'You must take your meds and stay well,' and they are thinking, 'I need a new shirt for the dance tuesday, Or what nail polish am I most likely wear?'" Piatt adds that Jackie's anti AIDS medicinal drugs only worked well for a time, And that newer drugs produced results Jackie couldn't tolerate. As Jackie's well being eroded, She asked her family if she should turn 15 several months early. She didn't to perform live that long. as part of Puerto Rico, Cuba, mexico, And other Latin American states, A girl's entrance into womanhood and her qualification for marriage is celebrated at her quincea typically her 15th birthday. Jackie had opted blind from what doctors believed was an AIDS related illness, And was already staying at a Phoenix hospice. With contributions from well wishers, Her family arranged a quincea complete with the wedding style dress for Jackie, Balloons, Mariachi music, A sip of champagne bottle; And an audience of family, classmates, medical practitioners, And the medical personnel. Jackie's quincea photograph shows her browsing the frothy white dress, A tiara on her head and a lilly in her hands. "this led to her last wish, Elida states that. "She wanted to do wear makeup and put on heels, And to see what it felt like to wear makeup and to feel sexy, Jackie died six weeks newer. She was buried in their own quincea dress. While there's definitely still no cure for HIV, The prognosis isn't so dismal. youngsters with HIV infection, these dramastic measures more resistant to the disease or have a different strain of the virus or stay vigilant about their medications, Are living longer than many exceptional and doctors ever expected possible. Some are now while attending college. It's changed from a airport disease to chronic, utters Dr. Piatt, a lot more like cystic fibrosis, A disease that ends in an early, But not urgent, passing of life. "I think about their futures, she says.
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